Pseudomyxoma SurvivorRun For Pseudomyxoma Survivor
About Pseudomyxoma Survivor
Pseudomyxoma Survivor is a charity run by patients and caregivers. We have a thriving support community providing emotional support to anyone whose life has been touched by pseudomyxoma peritonei (PMP) as well as appendix cancer and other rare peritoneal malignancies. As these diseases are so rare, having an online presence gives the community a scale where it is able to offer genuine support and advice around the clock – both emotional and practical. Patients, caregivers and families have joined together to create an online ‘family’.
- offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease
- manage a one-to-one buddy system
- fund small grants to help patients and caregivers with the impact of treatment
- support research
As a non-profit organisation, we’re completely dependent on voluntary donations. We’re too small to have offices or staff; the charity is run entirely by volunteers. Our patron is Sean Hepburn Ferrer. Sean’s mother, Audrey Hepburn, passed away shortly after being diagnosed with PMP. Sean also has a special interest in rare diseases more generally.